Posts Tagged ‘getting better’

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CFS: Thankful for the Tiniest Things

April 8, 2008

My poor hurting brother was in the hospital today…  He was set for an angiogram, he’s been having heart pain again.  During his angiogram, they decided to go ahead and give him a new shunt too.  (Is it a shunt, a stent?  Stint stent stunt, shint shent shunt… I forget)   Anway, I was his dutiful companion, aid, and chauffeur…   I managed to get up early for the 8am appointment just fine, as always this meant no real sleep, but I felt ok – even without my morning boost of happy coffee.

But here’s the revelation of improvement in the tiniest of things –  I parked in a parking garage and had to walk.  Those of you with CFS know what I’m talking about… the looming, sweating, palpating fear: “Walk exactly how far??? Ramps?? Hills? Stairs??”  These thoughts never even occurred to me!  That’s how amazing this experience was.   I remember having been to this hospital before (and I wasn’t a patient) and gauging every painful aching step, wondering how soon I would be able to sit, wondering if I could even make it down the hallway, and my previous visits hadn’t included any parking ramps.

Today I managed going back to my car three times, traversing these parking ramps that other ‘normal’ people wouldn’t even notice, walking down the hallways without even a thought of sitting down to rest.  There, in my mind, I’ve exactly quantified my 40% improvement.

Make no mistake though, after transporting him, sitting in the hospital room during his procedure, conversing with the nursing staff, making him comfortable when he came back from his surgery and then transporting him home, a total of 8.5 hours – I’m deadwater exhausted: finished, zombied, cattywhompus brained. 

So Chronic Fatigue spoke twice to me today –  I am better than I had ever hoped even in the tiniest of realms, and yet still stuck in the muddy mire of always being on the precipice of exhaustion.

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Chronic Fatigue Syndrome – You’re Not Alone

March 19, 2008

No Brainer 

I’m living proof that your CFS  Chronic Fatigue Syndrome can improve!  How did I get here after suffering for so very long?  In this article I’ll show you briefly where I’ve been and how I’ve improved to the point of being able to get dressed and being able exercize and live again.   First and foremost, it’s important to realize that even though you probably can’t get out of your house – you’re not alone.

You’re not alone in not being mobile or active, and you’re also not alone when you’re searching for advice, research and community.  Having Chronic Fatigue Syndrome can be devastating to your life and emotional health; we all need to take advantage of the resources at our fingertips.  The Chronic Fatigue Treatments Forum is one of the sites that I’ve used for outstanding and varied treatment information as well as a community of common sufferers that offer the support you’re looking for.

This CFS forum details several Chronic Fatigue Protocols: Amy Yasko, Garth Nicholson, Marshall Protocol, the leaders in cfs research, and more importantly proven results.   In addition, Jacob Teitelbaum’s clinical trials are covered in another area , which features a discussion on D-Ribose, a supplement that I can personally attest has done absolute wonders for my fibromyalgia pain as I’ve discussed previously in my blog.

In September of 2007, I was completely unable to get dressed or go out.  On this particular day – Labor Day Weekend, I had asked hubby to set aside time for me so that I could do “whatever I wanted”.  This meant dinner and a movie.  But I couldn’t even brush my hair or teeth on that day, let alone go out. I decided that was the absolute limit of the depths of my illness – I just wasn’t going to stand for it anymore.  (I use the word ‘stand’ as a pun – Orthostatic intolerance, OI, or the inability to stand for any length of time is the primary symptom of CFS.)

Since many of my difficulties in life can be attributed to medications that I’ve received in the past, I decided to go on an all natural treatment protocol.  Two supplements NT Factor and D-Ribose have helped me to the point of being able to get dressed, exercise, do the dishes, get groceries And make dinner all in the same day.  Amazing!  NT Factor has helped with creating energy, D-Ribose has helped me with the overwhelming pain of daily living. 

Supplements aren’t the only answer though.  I’ve carefully researched the effects of diet and digestion on CFS and have found that I’ll be on my clean diet program for many months, if not years to come.   I simplify this diet into three words on another blog post: water, meat, veggies.  Other people discuss their diet and supplement results on the CFS Forum too.  All kinds of helpful info. 

My most sincere desire is that for anyone with CFS, Chronic Fatigue Syndrome, Fibromyalgia to realize that they’re not alone –  You CAN feel better,  there IS hope,  the research is showing results, you can do it without spending a million dollars on doctors or drugs, and the Community is there for you.

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CFS is better – I took a walk for fun!

December 16, 2007

CFS is better 2Earlier this week, we had an icestorm.  It wasn’t devastating like some places in the u.s., just a coating of ice that made travelling difficult until it melted.  I had to go to the post office, about 5 blocks from my home – the dilemna: chip out my car from the ice and drive the 5 blocks, or walk on the salted streets?   I measured the energy outlay in my mind & chose the walk over the chipping.  It was a sunny morning, all of the ice was glittering and shimmering like rainbow white light.

If you’re reading this and you’re not a chronic fatigue sufferer, you probably can’t relate to this post.  But if you are a person with cfs – you know exactly what I’m talking about.  Taking the energy to walk 10 blocks total may mean the end to any other accomplishment I had in mind for the day, even though this activity would only take me about 25 minutes to complete, there was the possibility it might make me spent.  But I felt pretty good, and I was easily inspired by the sparkle glow.

I went to the post office with ease, despite the patches of deadly ice.  I was marvelling at the icedripped trees, the catch of rainbow light refracted in tiny prisms on the branches.  Sometimes nature can just be glorious.  The most amazing thing was, that after I arrived home, without sitting down –  I grabbed my camera and headed back out again!  I had to capture the feeling of the morning.  Of course my photos won’t do near justice to the magic of clear icelight, but  I have proof that I acted like a normal person for about 20 minutes of time. 

I did something just for fun!

CFS is better - I took a walk for fun!


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