Posts Tagged ‘Feeling Better’

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CFS: I’m Living a New Life

June 8, 2008

Quite honestly, I never thought that I could get this far. I barely even think of my chronic fatigue as a constant impediment to my daily living tasks. I am highly aware that my activities have to be limited or there will indeed be hell to pay, but on the other hand, my mind is no longer constrained by the constant fear of collapsing someplace or completely running out of steam when doing a specific task.

Earlier in my bloggyland I had mentioned my upcoming trip to Florida – It’s in the past now and I had such a great great time with my family. I went swimming every day! ME!!! (Good Lord, if you people knew me before, in the midst of my mollasses-ness (mollasiocity, mollastication?) you’d know how unbelievable that is…)

One of my big turning points was re-reading the label on the NT Factor – it now states: “For Severe Fatigue, increase to 9 tablets per day”… and I did – ANYTHING to feel mo’ better… This stuff totally works… I want to reiterate again, I’m not cured… I couldn’t work an 8 hour day for the life of me – if you suffer from CFS, you know well that getting up, showered, dressed is half of that battle… but lately, I’m thinking I could indeed work 20 hours per week. Yes, I really just said that… 

Anyway, NT Factor is a dietary supplement cooked up by clinical researchers in their quest to determine just what is causing Chronic Fatique Syndrome – aside from initial indications that it’s caused by a virus (epstein-barr, etc.).   NT Factor is a blend of probiotics and phosphoglypolipids that move into the cell wall and boost the mitochondrial function of creating ATP for your body.  That’s pretty heavy talk for some – translation:  for CFS sufferers, your cells are actually damaged – yup every ding dang one of them!  This is a supplement that supports energy production – getting your cells back to functioning and creating energy the way that they’re supposed to. 

So lately, I take 9 pills, and I’m still kinda flakey and dont’ take them every day.  One of my most serious limitations is that I still can’t handle stress or strong emotions.  Recently, a very very dear friend of mine passed away, and even though I could have gotten dressed and physically attended his services, the emotional strain of the circumstances left me completely weak.  I simply was unable to interact socially.  Emotions can be unbearable for me, still causing me to need to lay down.  I still have difficulty on the phone too.

But, on the good side: I walk now without thinking of sitting down… I do things… I proved my swimming longevity in Florida (I aint’ back to doin laps again, but I did wrangle, wriggle and wiggle into that suit and then freely frolic!). Yesterday I did housecleaning, including a serious scrub of da tub – my haunches hurt today, but I ain’t dead. Today I worked on my Kung Fu Panda Toys page, cleaned the kitchen (lordy what a mess!), then went to a movie with my brother, then went shopping for photo frames for my other brother’s handsome pic – that’s him up there – the reason for the Florida trip, Then I went to the grocery store, and I’m just now about to take a shower. 

My increased energy, sense of well being has decreased my bloggyrhythms (blog posts for the uninitiate), and also unfortunately has decreased my maniacal attention to my diet – now I feel better enough not to have to worry about every single morsel placed in my little mouth. I know I could even be better still, with greater adherence to my mostly veggie diet protocol.  It’s just that NT Factor totally totally works.  No Jokes.


Come See My Newest Wonders: Wall-E-Toys and Tiki Party Planning Guide (gotta do somefin to make some money – righteo captain?)

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CFS: My New Fear

April 10, 2008

I’m in the midst of my carefully devised plan to overcome Chronic Fatigue Syndrome.  I’ve changed my diet, found amazingly effective supplements in the form of NT Factor and D-Ribose, and I’ve garnered some success.  But a new fear is overtaking me lately.  The clinical studies involved with these ‘new found’ supplements reflect only a 40-45% improvement of CFS symptoms.  And this is where I am right now.  Does this mean that where I am is as good as it’s going to get?   Have I reached the pinnacle of improvement?

I no longer pour myself into the couch after walking just a few steps into the livingroom,  I can walk and do some normal life endeavors or attend an event without the need to collapse, but is this all there is?   I don’t know the answer….  I have to keep working, keep detoxing, keep hoping, keep praying…


Visit Wall*E Toys My newest squidooey venture.

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CFS – My Chronic Fatigue – Can My 40% Improvement be Quantified?

March 27, 2008

Around Christmas time, I was feeling about 25% better.  This meant that I could do one or two things without collapsing altogether.  I was able to take a 20 minute walk, OR do the dishes, OR cook dinner without too much complaint.  This is stark contrast to where I began this journey last September, when I was unable to get dressed or evey comb my hair.

Since then, I’ve changed my diet, added some important supplements – NT Factor and D-Ribose and my sleep has greatly improved.  Indulgences of Christmas took me several weeks to get over –   re-dieting and paying greater attention to my goals.   In February and March, I’ve kept up with my supplements and gone a little wayward on my diet due to wildly flucuating PMS, but in general I’ve maintained my program. 

About 2 weeks ago, I took a 2.5 mile hike!  If that doesn’t scream out 40% better, I don’t what ;).   This past weekend was a Family Easter Party Event and I had fun!  Foremost in my mind was the comparison to my family’s christmas party where I was able to stand and talk and participate emotionally.  But after that party was over – I felt the need to collapse and recover.   This time, for the Easter party, I had more fun – easily standing and engaging in conversation (CFS sufferers find conversation very difficult and energy consuming).  I noted to my family that I had showered, dressed, gone to the grocery store, played at the party and still felt good!   I was sure tired when I got home, but it felt like a supreme accomplishment.    I’m pretty sure that the preparation for the Christmas Party required taking my shower the day before and laying out my clothes in advance to save on energy costs 😉

So there you have it, I can do Something, or Two Things, not including the energy expended for showering and getting dressed!  I can participate emotionally and converse and enjoy small portions of life without getting immediately overloaded. 

Just this past week, I went through another bout of PMS, and sugar was in my house once again – Arrgghh! it’s like a sickness that stuff!  Anyway, I’m back on the program again and paying attention to non-processed foods, extra veggies and salads and seriously considering sauerkraut juice ‘therapy’ a.k.a. flingin’ it up my butt once again.   It’s so weird…  when I have PMS I am just not in my right mind and I simply cannot control that sugary stuff –  I’ve conquered that in the past, but MAN I struggle.   I know now that I have to prepare for the onslaught of PMS insanity a week in advance and be deadset on not screwing up! (Stevia helps with this, and I’m out, let’s get some!)

I’m taking walks several times a week, usually for about 30 minutes, but haven’t crossed that magnificent 2.5 mile threshold again…. but I’m a’gonna!   I’ve noted previously in my blog that I’m starting Colonix Colon Cleansing again in April – that’s still gonna happen too!

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Moving into TwentyFive Percent Better with Chronic Fatigue

December 4, 2007

I started this Chronic Fatigue journey in September.  After 17 years of complete debilitation, suffering and lack of any zeal for life, I am awakening, enlivening, becoming whole.  I’m nearly in tears to think where I’ve come from and now where I stand, yes, stand! 

It was about a month ago that I began to see some real improvement in my CFS symptoms, I noticed I actually ‘wanted’ to do the dishes and attend to daily living matters.  Prior to this, everything – every single tiny motion was a forced struggle.  Simple things that normal people do, like brushing my hair or teeth, were a monumental task that required a pep-talk and dredging for inner motivation to accomplish.  I’m now proud to admit that wearing underwear, brushing my hair and teeth, showering are just a daily part of living – no pep talk required!

I’m no energy whirlwind by any means.  I still tire easily,  I can’t stand for more than 10 minutes.  But I’m coming from a place where I couldn’t stand on my feet at all.  There are things about having chronic fatigue syndrome that I didn’t even know I was missing.  Let me explain further.  I didn’t realize that my capacity for any emotional depth, perception, experience was entirely lacking.  All of a sudden, I can Feel!  When this first started happening, I thought it was my hormones going crazy or something, but then I realized, it’s emotional energy that I’ve found.  Amazing.  Who would have ever thought that being happy or sad or pissed off was tied to physiology? 

In this blog, I’ve often said that I’m filled with hope – now I’m filled with expectation.  I feel like I’m among the living once again.  I look forward to experiences, activities, adventures.  Now I am certain I can recover and regain most of what has been out of reach for so many years.  Thank you Chronic Fatigue Scientist and Researcher Guys!

TwentyFive Percent Better with Chronic Fatigue

For those of you looking to recover from this nastyass illness, these are the things that I did:

  1. Changed my diet:  I have blogged about my diet here, and have excluded all sugar, white flour, processed foods.  I’ve adopted a diet of mostly veggies, some chicken and beef.  Me no likey seafood.
  2. Cleansing program:  I did Colonix for 30 days, with no real visible results, although I’m sure it helped me.
  3. Nutritional Supplements:  I attribute at least 60% of my improvement so far to two nutritional aids – NT Factor and D-Ribose.  I’ve blogged about how these two supplements have been clinically proven to reduce chronic fatigue symptoms, by affecting mitochondria on the cellular level.  I can wholeheartedly attest to that truth.

I’m not the most disciplined person on the earth.  I still waver in my diet and eat crackers and pretzels and drink coffee – all naughties.  I don’t take my supplements religiously or even as often as directed.  While a 20 minute walk would be good for me on a daily basis, I usually save my energy for housecleaning (yes I’ve been cleaning my house!) or sexual delights with hubby.   I still can’t report that I sleep any better either.   It’s fair to say that my sleeping problems existed long before I was cfs weary.

And while I do engage in online marketing of various things (mostly toys), I’m not trying to sell you anything.  So freaking often on the net, when you read some blog that sounds promising, you get to the bottom to find that they’re just hawking some product.  I’m not –  I’m bound and determined simply to get the word out that improvement, feeling better exists.   Feel free to contact me.


You’re invited to visit my newest sites:
Kung Fu Panda Toys
It’s a Merry Penguin Christmas
U.B. Funkeys Explained
Christmas Novelty Stringlights
Shrek the Third Toys and Games
Ratatouille Toys and Games
Best 2008 Calendars
Skull Gift Headquarters
Spiderwick Chronicles Movie Toys