Posts Tagged ‘Diet’

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CFS: I’m Living a New Life

June 8, 2008

Quite honestly, I never thought that I could get this far. I barely even think of my chronic fatigue as a constant impediment to my daily living tasks. I am highly aware that my activities have to be limited or there will indeed be hell to pay, but on the other hand, my mind is no longer constrained by the constant fear of collapsing someplace or completely running out of steam when doing a specific task.

Earlier in my bloggyland I had mentioned my upcoming trip to Florida – It’s in the past now and I had such a great great time with my family. I went swimming every day! ME!!! (Good Lord, if you people knew me before, in the midst of my mollasses-ness (mollasiocity, mollastication?) you’d know how unbelievable that is…)

One of my big turning points was re-reading the label on the NT Factor – it now states: “For Severe Fatigue, increase to 9 tablets per day”… and I did – ANYTHING to feel mo’ better… This stuff totally works… I want to reiterate again, I’m not cured… I couldn’t work an 8 hour day for the life of me – if you suffer from CFS, you know well that getting up, showered, dressed is half of that battle… but lately, I’m thinking I could indeed work 20 hours per week. Yes, I really just said that… 

Anyway, NT Factor is a dietary supplement cooked up by clinical researchers in their quest to determine just what is causing Chronic Fatique Syndrome – aside from initial indications that it’s caused by a virus (epstein-barr, etc.).   NT Factor is a blend of probiotics and phosphoglypolipids that move into the cell wall and boost the mitochondrial function of creating ATP for your body.  That’s pretty heavy talk for some – translation:  for CFS sufferers, your cells are actually damaged – yup every ding dang one of them!  This is a supplement that supports energy production – getting your cells back to functioning and creating energy the way that they’re supposed to. 

So lately, I take 9 pills, and I’m still kinda flakey and dont’ take them every day.  One of my most serious limitations is that I still can’t handle stress or strong emotions.  Recently, a very very dear friend of mine passed away, and even though I could have gotten dressed and physically attended his services, the emotional strain of the circumstances left me completely weak.  I simply was unable to interact socially.  Emotions can be unbearable for me, still causing me to need to lay down.  I still have difficulty on the phone too.

But, on the good side: I walk now without thinking of sitting down… I do things… I proved my swimming longevity in Florida (I aint’ back to doin laps again, but I did wrangle, wriggle and wiggle into that suit and then freely frolic!). Yesterday I did housecleaning, including a serious scrub of da tub – my haunches hurt today, but I ain’t dead. Today I worked on my Kung Fu Panda Toys page, cleaned the kitchen (lordy what a mess!), then went to a movie with my brother, then went shopping for photo frames for my other brother’s handsome pic – that’s him up there – the reason for the Florida trip, Then I went to the grocery store, and I’m just now about to take a shower. 

My increased energy, sense of well being has decreased my bloggyrhythms (blog posts for the uninitiate), and also unfortunately has decreased my maniacal attention to my diet – now I feel better enough not to have to worry about every single morsel placed in my little mouth. I know I could even be better still, with greater adherence to my mostly veggie diet protocol.  It’s just that NT Factor totally totally works.  No Jokes.


Come See My Newest Wonders: Wall-E-Toys and Tiki Party Planning Guide (gotta do somefin to make some money – righteo captain?)

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Chronic Fatigue Syndrome – You’re Not Alone

March 19, 2008

No Brainer 

I’m living proof that your CFS  Chronic Fatigue Syndrome can improve!  How did I get here after suffering for so very long?  In this article I’ll show you briefly where I’ve been and how I’ve improved to the point of being able to get dressed and being able exercize and live again.   First and foremost, it’s important to realize that even though you probably can’t get out of your house – you’re not alone.

You’re not alone in not being mobile or active, and you’re also not alone when you’re searching for advice, research and community.  Having Chronic Fatigue Syndrome can be devastating to your life and emotional health; we all need to take advantage of the resources at our fingertips.  The Chronic Fatigue Treatments Forum is one of the sites that I’ve used for outstanding and varied treatment information as well as a community of common sufferers that offer the support you’re looking for.

This CFS forum details several Chronic Fatigue Protocols: Amy Yasko, Garth Nicholson, Marshall Protocol, the leaders in cfs research, and more importantly proven results.   In addition, Jacob Teitelbaum’s clinical trials are covered in another area , which features a discussion on D-Ribose, a supplement that I can personally attest has done absolute wonders for my fibromyalgia pain as I’ve discussed previously in my blog.

In September of 2007, I was completely unable to get dressed or go out.  On this particular day – Labor Day Weekend, I had asked hubby to set aside time for me so that I could do “whatever I wanted”.  This meant dinner and a movie.  But I couldn’t even brush my hair or teeth on that day, let alone go out. I decided that was the absolute limit of the depths of my illness – I just wasn’t going to stand for it anymore.  (I use the word ‘stand’ as a pun – Orthostatic intolerance, OI, or the inability to stand for any length of time is the primary symptom of CFS.)

Since many of my difficulties in life can be attributed to medications that I’ve received in the past, I decided to go on an all natural treatment protocol.  Two supplements NT Factor and D-Ribose have helped me to the point of being able to get dressed, exercise, do the dishes, get groceries And make dinner all in the same day.  Amazing!  NT Factor has helped with creating energy, D-Ribose has helped me with the overwhelming pain of daily living. 

Supplements aren’t the only answer though.  I’ve carefully researched the effects of diet and digestion on CFS and have found that I’ll be on my clean diet program for many months, if not years to come.   I simplify this diet into three words on another blog post: water, meat, veggies.  Other people discuss their diet and supplement results on the CFS Forum too.  All kinds of helpful info. 

My most sincere desire is that for anyone with CFS, Chronic Fatigue Syndrome, Fibromyalgia to realize that they’re not alone –  You CAN feel better,  there IS hope,  the research is showing results, you can do it without spending a million dollars on doctors or drugs, and the Community is there for you.

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Goal Setting for Summer Fun Among the Fatigued

March 18, 2008

I’m better than I ever could have imagined and still, no where near where I could be.  I hiked for 2.5 miles last week ! (I did come home and take a nap right after though *sighs*). That was so far beyond anything I could have hoped for years, and still, I could be feeling better yet if I could stick to a cleaner diet. 

It took me a bit of time to overcome the Christmas dietary delusions and I’m back to feeling like I can accomplish some things, but this wayward trend toward sugary things when I have p.m.s is truly my downfall.  It’s keeping me from getting “mo’ bettah” sooner.

So… my current goals:

  1. Get back to eating 5 full servings of veggies a day – currently consuming about 3.
  2. Get the ding dang sugar and processed foods out of my diet – ya looney pms crazed woman.
  3. Maintain an exercise schedule, currently taking 3 or 4 walks a week, with emphasis on increasing times.
  4. Boost up on supplements – I still forget to take them every day, and they help so much!
  5. Focus on the Future –  I need to get better so I can be normal AND get a job! 

The catalyst is that my neice is graduating from highschool in May and we have a trip planned.   I hope to include much more activity than previous (last 15 years?) vacations.  Previously, I could go on a trip – but the only thing that I would ever think about was when I could sit down, or where – truly my only thought.  But this fantabulous resort has a water park in florida weather and I want to play! 

I took a trip with hubby last year to florida and georgia.  On the beach in florida, I was able to sit in the sand and look at the gulf, but I wasn’t able to walk or swim.  In georgia, we stayed at a resort and I was able to swim in the pool, but only for 10 minutes, then I was wasted.  Swimming is one of my greatest pleasures in life –  I’m going to do everything in my power to be able to swim and have the “Fun” word.  I just want to be normal.

In April, I plan to go on colonix again, and get back to the strictest of diets – meat, veggies, water.  I’ll keep you posted……


My newest: Kung Fu Panda Toys and Wall-E Toys.

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No Where Near Normal Yet Doing What I Can…

February 12, 2008

Spiderwick Chronicles Toys on SquidooI’m babysitting a little doggie this week named Sophie.  She’s a fox terrier or something prissy, I forget.  Since I’m used to hound dogs and labs, to me, this week feels a lot more like babysitting a china doll.  She’s fragile: emotionally, physically and she’s needy.  She’s a little too prissy to venture outside in the snow and so there have been numerous household clean ups.  (Although, I don’t blame her, it’s been below zero lately, I don’t want to pee outside either.)

While I’m continuing to progress on my chronic fatigue protocol, taking care of her has been enlightening in terms of my limited abilities.   The Good:  I have been able to take her for little walks and clean up around her, while still doing the normalities / banalities of life.  I still am making dinner, getting dressed, doing the dishes.  The Bad:  She exhausts me emotionally and physically.  She has made me realize that I can’t have a doggy until I become normal.  She’s exposed my physical weaknesses –  I want to have the energy to play and it’s just not there.

I am still hoping to begin exercising in March, in order to accomplish that goal, I realize that I need to stay much more focused on clean diet habits – much more intake of fresh vegetables and less carbs.  I’m still splurging a little on peanut butter crackers and cheeses – I have to cut back on the naughties.

In the time since September, most of my brain fog has left me and my marketing pages on Squidoo.com are getting better.  This past week I’ve been working on Spiderwick Chronicles Movie Toys & Games – I’m quite proud of it.   Squidoo.com is an amazing site where you can create a page on nearly any topic in the world.  They encourage marketing, free thinking, and innovation.  It’s not getting me rich by any means, and still, just feeling like I’m actually achieving, working, accomplishing has done wonders for my outlook and mood. Plus I love toys!  I know.. I’m an ancient being but this way I can play vicariously.

In my Chronic Fatigue Quest for health, right now I figure I’m about one third improved.  I know that once I start an exercise regimen, my improvement should happen faster.  How I long, yearn, aspire to be a normal human being again!


In addition to Spiderwick, I’ve made: Kung Fu Panda Toys

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Chronic Fatigue and Post Holiday Recovery

January 28, 2008

Christmas came and everything was a wild flurry of indulgent activities.  I was feeling better and it showed.  I wrote earlier in December that I was able to participate in life a little more.  My family’s Christmas Party was the highlight of my energies – I actually had ‘Fun’.  That word describes an experience that has eluded me for years.  While I was at my family’s gathering, it occurred to me that I was standing and talking, smiling and joking.  Not one thought of needing to sit down!  Like a miracle.

 I did have to spend the next day recovering – but nothing like I used to.  I just needed to spend the day relaxing because I was tired.  Previously this recovery day would have made me feel like I was 1000 pounds of sludge – every tiny movement painful and weighted from the fatigue. 

But as other family and friend visitations continued into January, all of my various partyfood indulgences began to take their toll.  By January 10th, I was feeling much more tired, and back to a non-functioning mode of living again.  Once again, my diet became the culprit and focus of my malaise.  I knew had to clean up my act and pay careful attention to restricting my foods to veggies and meat.  It has taken me these 3-4 weeks of re-dieting to get back to where I was in terms of energy and lessened fatigue symptoms.  For a couple of weeks there, I wasn’t even sure I could get back – but I did! Yay!

This was the first time I’ve gone wayward on my diet since September – wholly crackamoni did I pay for my mistakes.  I won’t do that again.

Two things that I’ve noticed during this holiday recovery period:  taking my NT Factor diligently didn’t prevent or dissuade the CFS reactions I received from my naughty diet.  But, increasing my D-Ribose DID help my muscle pain.  This supplement always seems to have results the next day, if not within hours.  I have to be careful taking the d-ribose though, if I take it as recommended (1 teaspoons 3 times a day), I get wired and can’t sleep.  It’s a natural sugar, after all.  When my diet is good and I’m feeling better like I do now, I only take 1tsp a day.

Another thing that has really made a huge difference in my sense of well being is jamaican blue mountain coffee – quite specifically this bean.  I don’t know why it offers such a supreme sense of “feelin’ alright”, sometimes I think they must grow it next to the ganja, lol.  Sure, you might say it’s just the caffeine, but it’s not.  I’ve tried tons of other coffees, and I’ve had all kinds of caffeine buzzes, but this coffee literally makes all of me feel Good.  Expensive as hell though.  But it’s still cheaper than doctors and new fangled drugs.

What’s weird about the jamaican coffee (or perhaps it’s my entire dietary changes in conjunction, I’m not sure) is that not only does it make me feel good during the day – charging me up and letting me accomplish things; I am absolutely convinced it’s the thing that’s helping me sleep better too.  My theory:  the blue mountain coffee stimulates my body enough to make me feel better, while at the same time wearing me out (energy consumption) so at night I just fall asleep – boom! like a felled tree.  It’s strange and yet a very happy thing.  Or, it could be that the coffee is somehow furthering the ATP enhancement that the NT Factor promotes on a cellular level. 

Anyway, I’m back to where I was just then in December and I’m still improving, losing weight, looking forward and being happy….  Thinking about doing another round of colon cleansing to get even further ahead on this journey.  I’ll keep ya posted…


Visit my newest! Spiderwick Chronicles Movie Toys and Kung Fu Panda Toys

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Chronic Fatigue Tales: 10 Percent Better and More after 60 days

October 27, 2007

taking supplements

I wrote awhile back that I’m feeling 10 percent better.  It’s still true.  I notice now that I can actually stand and talk for a minute or two, without the thought of finding a chair while I’m talking.  This is an unheard of occurrence for the past 15 years or so. The thing is?  I’m not even very good at my own Chronic Fatigue Protocol.  Let me explain.  I’ve done a vast amount of research on Chronic Fatigue diet and treatments. I’ve read clinical studies, read hundreds of websites on ‘cures’.  I’ve reviewed a bunch of products that promote CFS cures – although I haven’t purchased  any, save my foray into the Colonix world.  My research has led me to develop a list of supplements that clinical studies have shown to improve chronic fatigue.  I have been taking some of them.  NT Factor and D-Ribose supplements have definitely given me this 10 percent improvement.  In addition to these two mainstays, I have kept myself on a fairly rigorous diet regimen.  I’ve now been on this CFS cure journey for nearly 60 days.

Here’s where I tend to be flakey.  I’m not good at taking my supplements at all.  I have developed a tender tummy of late, and find that I can’t take my supplements on an empty stomach.  Trouble is, I don’t eat very often.  I don’t recommend not eating,  I know I should be eating at least two meals a day, but I just ain’t got the appetite.  Nobody wants to eat veggies for breakfast.  This was the case before I started this program too.  So I average actually taking the NT Factor and D-Ribose about 3 or 4 times a week, and then only once a day.   The recommended dosage is 3 times a day for both. Refer to the complete list of nutritional support – Supplementing my supplements? here.  The other thing is that I don’t like taking vitamins at night – they tend to give me insomnia.  Oh hell, everything gives me insomnia.  It’s phobic anxious neurotic soma paranoia.  I digress.

Doesn’t it seem that all of living holds devious instances of Catch-22’s?  I can’t get my act together enough to be able to take my supplements, while if I took my supplements, I’d be able to get more of my act together.  Taking my supplements as directed should in theory help me sleep better too.  As my saying goes: “I’m working on it”.  But I’m still enthused and plan on getting better at taking these things and then getting better.

The other place where I flake is my diet.  It can feel so so so strict.  I’m eating my meat and veggies, but this is where I fail: I have some white flour crackers about 3 times a week.  Oh no not crackers! lol.  Are 8 crackers so bad?  I don’t know.  The other thing that I do is add rye crisp to my salads.  And a couple of times a week, I cook something that has cheese in the recipe.  I feel like I’m in a confessional here. 😉  The way I look at it – I’m still feeling better and as long as that’s true, I don’t think a little cracker attack is gonna haunt me.

My point in all this is to remind myself that if I can develop a habit of taking all my supplements as directed then I should see even more improvement.  I’m just happy that I don’t have that overwhelming crushing sense of fatigue everyday.  I still feel like I’ve been hit by a truck, but now it’s a delivery truck – not a tanker.
10 Percent Better and More


Feel free to visit my other worlds:
Bee Movie Toys & Games
 Chronic Fatigue and NT Factor
Treat Your Depression Naturally
Coffee World
For the Love of Acid Cigars
Harley Davidson Gifts
Skull Gift Headquarters
Spiderwick Chronicles Movie Toys

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I’m Feeling 10 Percent Better!

October 6, 2007
I’ve noticed a 10 percent reduction of my CFS, Chronic Fatigue Syndrome in 35 days!  Smiling to myself,  I imagine you’re thinking : “What’s she so happy about? 10 percent is next to nothin.”  It’s huge to me, after wallowing in self-pity and ‘dissaustion’ (as my nephew used to say) for years.
How can one quantify a ten percent improvement?  Well..  I still feel like crap-o-la, but I notice that when I’m on my feet, I can do a couple of extra things without even thinking of the challenge.  For instance, last night I was making spinach casserole for dinner (mmm yummy I should post that recipe) and while the spinach was on the stove cooking, I just did the dishes – boom! done.  I must have stood there for 10 minutes without realizing it.  Typically, I’d be wholly mindful of any 10 minute standing session and at the forefront of my mind would be when I could sit down, where is the chair, I feel like I’m dying.   Not only that, but doing the dishes would not be my first choice of activity if I were presented with 10 free minutes of standing time.  I notice other little things too, but they’re still on the little scale. 
To compare, a prior spinach casserole cooking session would go like this:  put the spinach on the stove, go sit down immediately. rest.  go open the tomatoes and get the parmesan cheese, taking the spinach off the stove. go sit down. rest.  go complete the spinach recipe, putting it back on the stove. rest. 
What did I do to achieve this minor change?  I attribute this change to three things:  
  • Being entirely off of sugar, processed foods, white flour, most carbs for 30 days now. 
  • NT Factor 
  • Hope  
The transition to a no sugar, no processed food diet was difficult.  I got myself off of sugar first.  For the first three days, I allowed myself to eat anything under the sun that didn’t have obvious sugar in it.  I kept my tummy filled with potatoes, big mac’s, nachos, steak and diet pop.  (Advice to those of you that want to try this:  BBQ sauce and/or alcohol will cause your downfall – I consider them both obvious sugars.) The idea here was to distract my body’s craving for sugar by overloading on carbs and fat.  Then after 3 days, my body wasn’t absolutely demanding sugar – I could think relatively straight.  Then I began the strict diet of steamed vegies and one serving of meat per meal.   There’s another trick here too.  I eat my vegies first.  If I begin by eating a piece of steak or some chicken cacciatore, I can’t eat all my vegies.  The large servings (usually 3 cups) of vegies are what keep me from being hungry later.
NT Factor has been shown to clinically reduce fatigue among CFS patients by improving mitochondrial/ATP function.  I’ve discussed these clinical studies in an earlier blog, Oxidative Stress, under Mitochondrial Anarchy.  The product that I use is called NT Factor Energy.  I purchased this from Dr. Hoffman’s website.  NT Factor is available in a couple of different health supplements, but I wanted to take it as a stand-alone product, simply because I had already purchased my vitamin formulas separately.  Within four days of taking these pills, I could feel my brain fog clearing.  I’ve now been on this supplement for 10 days.  My condition has definitely improved.  I think in the clinical studies, patients were placed on this supplement for 12 weeks before their energy levels were compared.
Hope – I can’t say enough about the psychology of hope.  Languishing under the CFS onslaught, I was mourning so many losses: no hope of ever being on a trail in the Yellowstone wilderness and coming upon a moose again.  No hope of ever gliding my canoe across that pure silken coal-black water in the Boundary Waters  again.  No hope of finding a gold or diamond necklace under the sand while metal detecting at the beach.  Things have changed.  I’m starting to dream!

Moose


Feel free to see my other worlds:
Coffee World
For the Love of Acid Cigars
Harley Davidson Gifts
Spiderwick Chronicles Movie Toys