Archive for the ‘A Work in Progress’ Category

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Still Feeling Froggy – Chronic Fatigue Syndrome, CFIDS

June 20, 2008

In my continual wonderment at how much my Chronic Fatigue Syndrome has improved, I’m also just as perplexed at my own ever-present toxicity. I still feel foggy, which I call froggy (cuz I’m insane) and I know it’s because I’m no where near healthy. The pursuit of health seems so complicated by so many factors and yet at the same time, the answer seems universal to nearly any health issue.

My complications include: sugar addiction, wavering hormonal flux, reliance on caffeine, the energy that’s required to create natural well-balanced meals on a daily basis.

The Universal Health Answer: Have ya ever noticed that the natural response to nearly any health difficulty on earth is the same? The Dr. Dean Ornish Heart Health Diet, Cancer Recovery Diet, Detox Diet, Chronic Fatigue Diet, Losing Weight Diet, Yeast Ridding Candida Diet, Athletic Diet – Simplified: Eat mostly fresh veggies – both raw and cooked, and some fruit. Brilliant!

Gee that sounds so easy – Why is it so difficult? I know from my own experience that sugar is one serious evil-doer, complicating my blood sugar levels, hampering my efforts through continual cravings and overwhelming any rationale to eat my veggies. Supposing I’ve gone off sugar for three days to overcome that monkey on my back, I still become weighted down by an inexhaustible yearning for starchy carbs. I think that’s just my blood sugar screaming out for more, more, more. Wouldn’t it be great if I could tell my blood sugar to just shut up already?

The Pursuit of Happiness: My goals never change – I’d like to be able to work, play, and think like a normal human being! To quote Scripture for a second here: “As a man thinks, So Is He” – This is the first key to success: Point your mind in the right direction, and your body will follow. In order to achieve my goals of feeling better, acting like a normal person, I need to focus my thoughts on the detox veggie diet and stop revelling in fantasies about chocolate cake and brownies.

In this vain, it’s always most helpful for me to view sugary and starchy foods as “poisons” to my goal, and the veggies as “cleansers”. It’s not too extreme to call the cakes & candies poison – they’re literally robbing me, and have robbed me of my life for 17 years. So sad to even consider the complete effect of sugar addiction in one glance like that. I’ve also proven to myself that the cleansing effect of the natural vegetable diet is dramatic and enervating. And it’s always my thoughts that create the motivations to change or languish, resulting in good or bad behavior. I feel like Winnie the Pooh: “Think, Think, Think”….

Mitochondrial and Other Supplements: Imagining that I’ve managed to maintain a clean veggie oriented diet and that my blood sugar levels aren’t making me a slave to their whims, I know that nutritional supplementation is essential to create my health. I feel like I owe all of my CFS improvement to NT Factor – Lipid Replacement Therapy. Chronic Fatigue Syndrome Research has shown damage to the Mitochondrial Function of the cell, the area responsible for fueling energy in the body. While the phosphoglycolipids in NT Factor don’t repair the mitochondria directly, they do provide the pre-cursors for ATP production. This same treatment protocol has been adopted for fatigue among cancer patients as well with amazing results. D-Ribose helps with the fibromyalgia pain of daily living too, and although this has never been my primary complaint, I know it’s a major factor in many CFIDS sufferers.

Continual Health Resolve: Here I am again, still pressing on toward winning this life long battle. “Keep going Carrie, You Can Make It! – Think These Thoughts!”

1. Stay away from Sugar and Starch. They’re the nasty creeps causing your downfall!
2. Eat 5 Mighty cups of Veggies per day. (Other people can eat fruit too, I can’t – blood sugar.)
3. Maintain a constant influx of Supplements. This is where your energy is coming from, you ninny.
4. Drink 64oz. of water daily, before 8pm – I hate peeing all night.
5. Walk 3 times a week for 20 minutes – even if it kills ya.
6. Control Your Thought Life – stop thinking about Aunt Grace’s Brownies, think about swimming instead!
7. Go on a juice fast, gallbladder flush, or colonix cleanse again. I promise you’ll feel better if you do!

Ok, I’m done lecturing myself…. I’m striving to do better… I gotta get serious to get my total life back – I believe it’s truly possible now!


Visit my latest toy pages: Ice Age 3 Dawn of the Dinosaurs , Terminator Salvation Toys and Transformers Revenge of the Fallen Toys


Notes: Thanks to Marilyn’s Toy Pages for that amazing frog cut out picture. Also, “feeling froggy” in the urban dictionary actually refers to feeling lively or upbeat. If you’d care to know how one lovely girl that has lost her job due to CFS earns a seriously tiny income, you’re welcome to visit my Wall-E Toys. Thanks!

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CFS: My New Fear

April 10, 2008

I’m in the midst of my carefully devised plan to overcome Chronic Fatigue Syndrome.  I’ve changed my diet, found amazingly effective supplements in the form of NT Factor and D-Ribose, and I’ve garnered some success.  But a new fear is overtaking me lately.  The clinical studies involved with these ‘new found’ supplements reflect only a 40-45% improvement of CFS symptoms.  And this is where I am right now.  Does this mean that where I am is as good as it’s going to get?   Have I reached the pinnacle of improvement?

I no longer pour myself into the couch after walking just a few steps into the livingroom,  I can walk and do some normal life endeavors or attend an event without the need to collapse, but is this all there is?   I don’t know the answer….  I have to keep working, keep detoxing, keep hoping, keep praying…


Visit Wall*E Toys My newest squidooey venture.

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CFS – My Chronic Fatigue – Can My 40% Improvement be Quantified?

March 27, 2008

Around Christmas time, I was feeling about 25% better.  This meant that I could do one or two things without collapsing altogether.  I was able to take a 20 minute walk, OR do the dishes, OR cook dinner without too much complaint.  This is stark contrast to where I began this journey last September, when I was unable to get dressed or evey comb my hair.

Since then, I’ve changed my diet, added some important supplements – NT Factor and D-Ribose and my sleep has greatly improved.  Indulgences of Christmas took me several weeks to get over –   re-dieting and paying greater attention to my goals.   In February and March, I’ve kept up with my supplements and gone a little wayward on my diet due to wildly flucuating PMS, but in general I’ve maintained my program. 

About 2 weeks ago, I took a 2.5 mile hike!  If that doesn’t scream out 40% better, I don’t what ;).   This past weekend was a Family Easter Party Event and I had fun!  Foremost in my mind was the comparison to my family’s christmas party where I was able to stand and talk and participate emotionally.  But after that party was over – I felt the need to collapse and recover.   This time, for the Easter party, I had more fun – easily standing and engaging in conversation (CFS sufferers find conversation very difficult and energy consuming).  I noted to my family that I had showered, dressed, gone to the grocery store, played at the party and still felt good!   I was sure tired when I got home, but it felt like a supreme accomplishment.    I’m pretty sure that the preparation for the Christmas Party required taking my shower the day before and laying out my clothes in advance to save on energy costs 😉

So there you have it, I can do Something, or Two Things, not including the energy expended for showering and getting dressed!  I can participate emotionally and converse and enjoy small portions of life without getting immediately overloaded. 

Just this past week, I went through another bout of PMS, and sugar was in my house once again – Arrgghh! it’s like a sickness that stuff!  Anyway, I’m back on the program again and paying attention to non-processed foods, extra veggies and salads and seriously considering sauerkraut juice ‘therapy’ a.k.a. flingin’ it up my butt once again.   It’s so weird…  when I have PMS I am just not in my right mind and I simply cannot control that sugary stuff –  I’ve conquered that in the past, but MAN I struggle.   I know now that I have to prepare for the onslaught of PMS insanity a week in advance and be deadset on not screwing up! (Stevia helps with this, and I’m out, let’s get some!)

I’m taking walks several times a week, usually for about 30 minutes, but haven’t crossed that magnificent 2.5 mile threshold again…. but I’m a’gonna!   I’ve noted previously in my blog that I’m starting Colonix Colon Cleansing again in April – that’s still gonna happen too!

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Chronic Fatigue Syndrome – You’re Not Alone

March 19, 2008

No Brainer 

I’m living proof that your CFS  Chronic Fatigue Syndrome can improve!  How did I get here after suffering for so very long?  In this article I’ll show you briefly where I’ve been and how I’ve improved to the point of being able to get dressed and being able exercize and live again.   First and foremost, it’s important to realize that even though you probably can’t get out of your house – you’re not alone.

You’re not alone in not being mobile or active, and you’re also not alone when you’re searching for advice, research and community.  Having Chronic Fatigue Syndrome can be devastating to your life and emotional health; we all need to take advantage of the resources at our fingertips.  The Chronic Fatigue Treatments Forum is one of the sites that I’ve used for outstanding and varied treatment information as well as a community of common sufferers that offer the support you’re looking for.

This CFS forum details several Chronic Fatigue Protocols: Amy Yasko, Garth Nicholson, Marshall Protocol, the leaders in cfs research, and more importantly proven results.   In addition, Jacob Teitelbaum’s clinical trials are covered in another area , which features a discussion on D-Ribose, a supplement that I can personally attest has done absolute wonders for my fibromyalgia pain as I’ve discussed previously in my blog.

In September of 2007, I was completely unable to get dressed or go out.  On this particular day – Labor Day Weekend, I had asked hubby to set aside time for me so that I could do “whatever I wanted”.  This meant dinner and a movie.  But I couldn’t even brush my hair or teeth on that day, let alone go out. I decided that was the absolute limit of the depths of my illness – I just wasn’t going to stand for it anymore.  (I use the word ‘stand’ as a pun – Orthostatic intolerance, OI, or the inability to stand for any length of time is the primary symptom of CFS.)

Since many of my difficulties in life can be attributed to medications that I’ve received in the past, I decided to go on an all natural treatment protocol.  Two supplements NT Factor and D-Ribose have helped me to the point of being able to get dressed, exercise, do the dishes, get groceries And make dinner all in the same day.  Amazing!  NT Factor has helped with creating energy, D-Ribose has helped me with the overwhelming pain of daily living. 

Supplements aren’t the only answer though.  I’ve carefully researched the effects of diet and digestion on CFS and have found that I’ll be on my clean diet program for many months, if not years to come.   I simplify this diet into three words on another blog post: water, meat, veggies.  Other people discuss their diet and supplement results on the CFS Forum too.  All kinds of helpful info. 

My most sincere desire is that for anyone with CFS, Chronic Fatigue Syndrome, Fibromyalgia to realize that they’re not alone –  You CAN feel better,  there IS hope,  the research is showing results, you can do it without spending a million dollars on doctors or drugs, and the Community is there for you.

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Goal Setting for Summer Fun Among the Fatigued

March 18, 2008

I’m better than I ever could have imagined and still, no where near where I could be.  I hiked for 2.5 miles last week ! (I did come home and take a nap right after though *sighs*). That was so far beyond anything I could have hoped for years, and still, I could be feeling better yet if I could stick to a cleaner diet. 

It took me a bit of time to overcome the Christmas dietary delusions and I’m back to feeling like I can accomplish some things, but this wayward trend toward sugary things when I have p.m.s is truly my downfall.  It’s keeping me from getting “mo’ bettah” sooner.

So… my current goals:

  1. Get back to eating 5 full servings of veggies a day – currently consuming about 3.
  2. Get the ding dang sugar and processed foods out of my diet – ya looney pms crazed woman.
  3. Maintain an exercise schedule, currently taking 3 or 4 walks a week, with emphasis on increasing times.
  4. Boost up on supplements – I still forget to take them every day, and they help so much!
  5. Focus on the Future –  I need to get better so I can be normal AND get a job! 

The catalyst is that my neice is graduating from highschool in May and we have a trip planned.   I hope to include much more activity than previous (last 15 years?) vacations.  Previously, I could go on a trip – but the only thing that I would ever think about was when I could sit down, or where – truly my only thought.  But this fantabulous resort has a water park in florida weather and I want to play! 

I took a trip with hubby last year to florida and georgia.  On the beach in florida, I was able to sit in the sand and look at the gulf, but I wasn’t able to walk or swim.  In georgia, we stayed at a resort and I was able to swim in the pool, but only for 10 minutes, then I was wasted.  Swimming is one of my greatest pleasures in life –  I’m going to do everything in my power to be able to swim and have the “Fun” word.  I just want to be normal.

In April, I plan to go on colonix again, and get back to the strictest of diets – meat, veggies, water.  I’ll keep you posted……


My newest: Kung Fu Panda Toys and Wall-E Toys.

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No Where Near Normal Yet Doing What I Can…

February 12, 2008

Spiderwick Chronicles Toys on SquidooI’m babysitting a little doggie this week named Sophie.  She’s a fox terrier or something prissy, I forget.  Since I’m used to hound dogs and labs, to me, this week feels a lot more like babysitting a china doll.  She’s fragile: emotionally, physically and she’s needy.  She’s a little too prissy to venture outside in the snow and so there have been numerous household clean ups.  (Although, I don’t blame her, it’s been below zero lately, I don’t want to pee outside either.)

While I’m continuing to progress on my chronic fatigue protocol, taking care of her has been enlightening in terms of my limited abilities.   The Good:  I have been able to take her for little walks and clean up around her, while still doing the normalities / banalities of life.  I still am making dinner, getting dressed, doing the dishes.  The Bad:  She exhausts me emotionally and physically.  She has made me realize that I can’t have a doggy until I become normal.  She’s exposed my physical weaknesses –  I want to have the energy to play and it’s just not there.

I am still hoping to begin exercising in March, in order to accomplish that goal, I realize that I need to stay much more focused on clean diet habits – much more intake of fresh vegetables and less carbs.  I’m still splurging a little on peanut butter crackers and cheeses – I have to cut back on the naughties.

In the time since September, most of my brain fog has left me and my marketing pages on Squidoo.com are getting better.  This past week I’ve been working on Spiderwick Chronicles Movie Toys & Games – I’m quite proud of it.   Squidoo.com is an amazing site where you can create a page on nearly any topic in the world.  They encourage marketing, free thinking, and innovation.  It’s not getting me rich by any means, and still, just feeling like I’m actually achieving, working, accomplishing has done wonders for my outlook and mood. Plus I love toys!  I know.. I’m an ancient being but this way I can play vicariously.

In my Chronic Fatigue Quest for health, right now I figure I’m about one third improved.  I know that once I start an exercise regimen, my improvement should happen faster.  How I long, yearn, aspire to be a normal human being again!


In addition to Spiderwick, I’ve made: Kung Fu Panda Toys

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Chronic Fatigue Tales: 10 Percent Better and More after 60 days

October 27, 2007

taking supplements

I wrote awhile back that I’m feeling 10 percent better.  It’s still true.  I notice now that I can actually stand and talk for a minute or two, without the thought of finding a chair while I’m talking.  This is an unheard of occurrence for the past 15 years or so. The thing is?  I’m not even very good at my own Chronic Fatigue Protocol.  Let me explain.  I’ve done a vast amount of research on Chronic Fatigue diet and treatments. I’ve read clinical studies, read hundreds of websites on ‘cures’.  I’ve reviewed a bunch of products that promote CFS cures – although I haven’t purchased  any, save my foray into the Colonix world.  My research has led me to develop a list of supplements that clinical studies have shown to improve chronic fatigue.  I have been taking some of them.  NT Factor and D-Ribose supplements have definitely given me this 10 percent improvement.  In addition to these two mainstays, I have kept myself on a fairly rigorous diet regimen.  I’ve now been on this CFS cure journey for nearly 60 days.

Here’s where I tend to be flakey.  I’m not good at taking my supplements at all.  I have developed a tender tummy of late, and find that I can’t take my supplements on an empty stomach.  Trouble is, I don’t eat very often.  I don’t recommend not eating,  I know I should be eating at least two meals a day, but I just ain’t got the appetite.  Nobody wants to eat veggies for breakfast.  This was the case before I started this program too.  So I average actually taking the NT Factor and D-Ribose about 3 or 4 times a week, and then only once a day.   The recommended dosage is 3 times a day for both. Refer to the complete list of nutritional support – Supplementing my supplements? here.  The other thing is that I don’t like taking vitamins at night – they tend to give me insomnia.  Oh hell, everything gives me insomnia.  It’s phobic anxious neurotic soma paranoia.  I digress.

Doesn’t it seem that all of living holds devious instances of Catch-22’s?  I can’t get my act together enough to be able to take my supplements, while if I took my supplements, I’d be able to get more of my act together.  Taking my supplements as directed should in theory help me sleep better too.  As my saying goes: “I’m working on it”.  But I’m still enthused and plan on getting better at taking these things and then getting better.

The other place where I flake is my diet.  It can feel so so so strict.  I’m eating my meat and veggies, but this is where I fail: I have some white flour crackers about 3 times a week.  Oh no not crackers! lol.  Are 8 crackers so bad?  I don’t know.  The other thing that I do is add rye crisp to my salads.  And a couple of times a week, I cook something that has cheese in the recipe.  I feel like I’m in a confessional here. 😉  The way I look at it – I’m still feeling better and as long as that’s true, I don’t think a little cracker attack is gonna haunt me.

My point in all this is to remind myself that if I can develop a habit of taking all my supplements as directed then I should see even more improvement.  I’m just happy that I don’t have that overwhelming crushing sense of fatigue everyday.  I still feel like I’ve been hit by a truck, but now it’s a delivery truck – not a tanker.
10 Percent Better and More


Feel free to visit my other worlds:
Bee Movie Toys & Games
 Chronic Fatigue and NT Factor
Treat Your Depression Naturally
Coffee World
For the Love of Acid Cigars
Harley Davidson Gifts
Skull Gift Headquarters
Spiderwick Chronicles Movie Toys