
About this Goofball
Hi, I’m carrie. I’m 50 years old and trying desperately to improve my condition of chronic fatigue. Feel free to leave comments, or not, I initially created this site to store my supplements list while I was on the net, then I found out that I have more to say. I’d be smilin if I knew that my experiences helped you in some way.
Thanks for visiting!
In your research, have you looked at C.Pneumoniae.? It’s strongly associated with CFS/ME, and eliminating it seems to help most of us. The site is all-volunteer, so it’s not very polished, but on the other hand, no one has anything to sell.
It’s also well-documented (lots of links to CFS/C.Pn. research) and well-connected (several professionals in the field, including the head of Vanderbilt’s Microbiology Department, keep tabs on the site.)
When I find someone else with CFS/ME, I tell them about C. Pneumoniae. Then, they’re on their own.
Hope your improvement keeps improving — I am feeling much better, but I have at least 18 months to go.
Ron
Hi, I haven’t read all thru your site, but figured I’d share info. I had several unusual health problems, as well as tiredness, back pain, times of joint pain, not mentally sharp, and finally an allergic reaction and trip to the ER. This led me to finally go for the ELISA/ACT Allergy test I’d heard about. http://elisaact.com/.
Expensive, but I wish I did it years before. They identified common food ingredients, chemicals, and a typical inactive ingredient in medicines that I should avoid. I did and felt much better.
Recently after work I collapsed on the sofa, staring off, didn’t want to go for walk w/ friends, had canceled a hike the day before since my back hurt so bad. I looked around at all I hadn’t gotten done that weekend, realized I napped three days in a row (unusual after avoiding identified items), and thought “What did I eat?” I couldn’t find any offending food or ingredient, thought to double check a prescription, which turned out to contain the very common inactive ingredient povidone (aka PVP, polyvinylpyrillodone, crospovidone, etc.), one of my allergens. It is amazing how tired I used to be, how much it interfered with work and home life, and how much worse my back pain was when consuming anything, and the huge change when avoiding them. I’ve wondered how many people w/ CFS or fibromyalgia may have allergies (ELISA looks at delayed lymphocyte reaction, not standard IgE allergies)to chemicals, preservatives or ingredients we never think about. Let me know if you know anything about this.
I first realized there was some problem related to food when doing juice fasts and felt fantastic after 5 days of nothing but juice. I once went 8 days w/out eating because I didn’t want to return to feeling like crap.